‘Glaring Gap’ Seen in DNA Privacy Pledges by 23andMe, Ancestry
- Testing companies recently unveiled privacy best practices
- Guidelines don’t apply to anonymized data sold to drugmakers
Source: Science Photo Library RF
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Genetic-testing companies that have decoded the DNA of millions just introduced new guidelines to protect data privacy.
But those best practices failed to address a major concern: what happens to customers’ data that is shared for research with pharmaceutical giants, academics and others, often for a profit.