A Lethal Genetic Disease, Hidden By Red Tape

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May 14 (Bloomberg) -- Halena Black's family in Ogden, Utah, is at the center of a growing ethical debate involving people who undergo DNA testing for research purposes and don't receive the results for regulatory reasons. Black's daughter, Camilla Grondahl, gave birth to a son last year who died from a lethal inherited disorder that has afflicted baby boys in the Black family. Grondahl had hoped to find out from genetic researcher Gholson Lyon if her unborn child was at risk. Bloomberg's John Lauerman reports. (Source: Bloomberg)


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