{"id":22471,"date":"2016-09-02T16:18:15","date_gmt":"2016-09-02T16:18:15","guid":{"rendered":"https:\/\/www.bloomberg.com\/distribution\/blog\/2016-09-02\/new-hope-kids-rare-disease-thanks-dinner-party\/"},"modified":"2016-10-21T20:54:03","modified_gmt":"2016-10-21T20:54:03","slug":"new-hope-kids-rare-disease-thanks-dinner-party","status":"publish","type":"post","link":"https:\/\/www.bloomberg.com\/distribution\/blog\/2016-09-02\/new-hope-kids-rare-disease-thanks-dinner-party\/","title":{"rendered":"New Hope for Kids With Rare Disease"},"content":{"rendered":"

[vc_row][vc_column][vc_column_text]Wall Street couple helped push for first potential treatment of\u00a0spinal muscular atrophy.\u00a0If the Food and Drug Administration\u00a0approves the drug, called nusinersen, it could help many people and show how private industry, philanthropists and patients can join forces to promote research into specific diseases.<\/p>\n

Story here <\/a>by Doni Bloomfield\/Bloomberg
\n<\/em>
\nPhotographs by Uno Yi\/Bloomberg<\/em>[\/vc_column_text][vc_single_image image=”22461″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22469″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22470″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22463″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22460″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22468″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22465″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22462″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22466″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][vc_single_image image=”22467″ alignment=”center” img_link_large=”yes” show_caption=”yes” el_class=”lightbox”][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"

Wall Street couple pushed for first potential treatment of spinal muscular atrophy.<\/p>\n","protected":false},"author":1586,"featured_media":22464,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[2528,2529,2530,2533,1470,2532,2531,2534,2535],"class_list":["post-22471","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-photos","tag-biogen","tag-disease","tag-drugs","tag-fda","tag-health","tag-health-care","tag-healthcare","tag-medical","tag-uno-yi","product-photos"],"yoast_head":"\nNew Hope for Kids With Rare Disease | Bloomberg Media Distribution<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.bloomberg.com\/distribution\/blog\/2016-09-02\/new-hope-kids-rare-disease-thanks-dinner-party\/\" \/>\n<meta property=\"og:locale\" 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