Championing the Fight Against Cancer

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July 17 (Bloomberg) -- Multiple Myeloma Research Foundation CEO Kathy Giusti discusses cancer research with Pimm Fox on Bloomberg Television's "Taking Stock." (Source: Bloomberg)

Data to change the world, and she joins us now.

Thanks for coming in.

Just take us back to 1996. what happened?

I was working for a pharmaceutical company, a beautiful little girl, a new house, everything was great, and then with an unexpected physical, i was told i have multiple myeloma.

It was fatal, and i had three years to live.

That is what you were told.

That is what i was told.

But that is not what happened.

No.

my first instinct was to say there must be drugs in the pipeline for this form of cancer, and i learned very quickly that many do not have drugs in the pipeline.

So i set my focus on drug development and try to change the way cancer research is done.

Not only for your own treatments, to a certain extent, but raising money for multiple myeloma.

Tell us about that.

We are proud of how we raise money.

We desperately need the funding to attract the scientists.

What we are more prone of is having spend our money.

We are very disciplined.

We look at the models out there, and we look at the obstacles towards finding new drugs faster, and we develop new models to fix them.

This is building.

There were diagnostic firms.

Making everyone more efficient.

Making people more efficient but also making people more informed when they battled cancer.

Letting them become accidents in their own disease.

Studying the disease.

My day is precious.

The ability is critically important.

The more that we can take data from many centers and many studies and put it in the public domain, and let everybody sees it.

We would generate hypothesis and cures.

That is what our focus is.

Tell us about compass.

That is a study that is critically important to cancer, and here is why.

Patients responded to their first treatment when they get cancer, but the relapse.

We all relapse, and that means the cancer has changed and found a way around the treatment, but nobody is falling that patient through the moment of cancer through relapse and looking at the data together, so we said, that is just not acceptable.

We launched the conmpass -- c ompass study with more than 1000 patients, and everyone can see the data.

New hypothesis, new drugs to the clinic, that is the way to find the cure.

What was it like at the white house ceremony recently?

It was interesting.

The other people who were winning awards for open access were in physiology and archaeology, and in life sciences, we are behind the curve.

In the areas of medicine, being high on the curve for sharing data.

This text has been automatically generated. It may not be 100% accurate.

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