Health Care Technology
Company Overview of PatientsLikeMe, Inc.
PatientsLikeMe, Inc. operates an online health data and information sharing Website for patients. It enables patients to share data with other patients, caregivers, physicians, researchers, and pharmaceutical and medical device companies. The company offers data and information on patients, treatments, symptoms, and research. Its data and information helps researchers learn how diseases act in the real world and accelerate the discovery of new treatments. PatientsLikeMe, Inc. was founded in 2004 and is based in Cambridge, Massachusetts.
155 Second Street
Cambridge, MA 02141
Founded in 2004
Key Executives for PatientsLikeMe, Inc.
Co-Founder, President and Director
Compensation as of Fiscal Year 2015.
PatientsLikeMe, Inc. Key Developments
The American College of Cardiology and PatientsLikeMe Launch Partnership to Bring Patient Focus to Diabetes Research and Care
Nov 9 15
The American College of Cardiology (ACC) and PatientsLikeMe launched a partnership to explore innovative ways to make real-world patient feedback and experience more central to diabetes research and care. Focused on the ACC’s Diabetes Collaborative Registry, the partnership will encourage people living with diabetes to offer perspectives to enhance and accelerate the registry’s research and development agenda. The announcement was made during American Diabetes Month and at the start of the week marking the International Diabetes Federation’s World Diabetes Day. The Diabetes Collaborative Registry is the first global, cross-specialty clinical diabetes registry designed to track and improve the quality of diabetes and cardiometabolic care delivered to patients across the primary and specialty care continuum. The registry’s founding industry sponsor, AstraZeneca, is also a PatientsLikeMe partner and shares the goal to bring the patient voice into the center of scientific discovery and development. The collaboration’s first step calls for the ACC and PatientsLikeMe to reach out to people living with diabetes to identify priorities for the registry’s research and program development agenda. Practices participating in the Diabetes Collaborative Registry will be able to offer their patients access to the PatientsLikeMe website so they can become part of the online patient community, which is open to any patient living with diabetes. Nearly 20,000 people already use the website to connect in forums and to track and share their experiences living with diabetes, including reporting the severity of symptoms such as fatigue, pain and depressed mood, quality of life, and the effectiveness of various treatments or non-drug interventions.
PatientsLikeMe and the FDA Sign Research Collaboration Agreement
Jun 15 15
PatientsLikeMe and the U.S. Food and Drug Administration (FDA) have signed a research collaboration agreement to determine how patient-reported data can give new insights into drug safety. Under the collaboration, PatientsLikeMe and the FDA will systematically explore the potential of patient-generated data to inform regulatory review activities related to risk assessment and risk management. The cornerstone of the FDA’s post-approval drug safety surveillance is a spontaneous reporting system consisting of individual case safety reports. Reporting adverse events to the FDA is mandatory for drug product manufacturers but voluntary for healthcare professionals and patients. The majority of these individual case safety reports are submitted by healthcare professionals and patients to drug product manufacturers, who then have regulatory requirements to report them to the FDA. The PatientsLikeMe data are generated in a different context by patients themselves, and provide important real-time insights into the nuances inherent in patients’ experiences over time, including drug tolerance, adherence and quality of life.
Patientslikeme Appoints Jason Johnson as Executive Vice President and Head of Research and Development
May 21 15
PatientsLikeMe appointed Jason Johnson as Executive Vice President and head of research and development (R&D). Johnson leads the company's research, data science, and informatics teams, which focus on analyzing and merging patient-reported and other data types to develop models of disease progression and generate new insights about disease, treatments, and health. Johnson reports directly to CEO Martin Coulter.
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