Nationwide Initiative Aims to Help People Living with Epilepsy Manage
Seizures and Stay Safe
LANDOVER, Md. & DEERFIELD, Ill. -- November 14, 2013
This month, the Epilepsy Foundation and Lundbeck joined together in a
nationwide effort to bring information about managing seizures to people
living with epilepsy and their families. At the center of the initiative is a
new educational infographic created by the Epilepsy Foundation titled
“Managing Epilepsy & Seizures: Facts to Help Keep You Safe.” It can be viewed
During November – which is National Epilepsy Awareness Month – Lundbeck’s
neurology field representatives will deliver the infographic directly to U.S.
doctor’s offices for distribution to those living with epilepsy and their
caregivers. Additionally, it will be distributed at events held by the
Epilepsy Foundation and its nearly 50 affiliates throughout the country.
“Many people live a full and productive life with epilepsy, while others
struggle a great deal experiencing multiple seizures that significantly impede
daily life,” said Phillip M. Gattone, president and CEO of the Epilepsy
Foundation. “The infographic is applicable to people with epilepsy across this
spectrum. We hope the widespread availability of this information will improve
safety and help people living with epilepsy feel more in control.”
The infographic provides guidance on speaking with your doctor, family,
friends, co-workers and teachers about potential risks associated with
epilepsy and seizures. It includes tips for safe travel, how to make your home
safer and when to call 911.
The infographic also introduces information about the risk of Sudden
Unexpected Death in Epilepsy (SUDEP), urging those with epilepsy to lower
their risk by creating a seizure management plan with their doctor that leads
to as few seizures as possible.
“SUDEP happens to 1 in every 1,000 people with epilepsy each year,^1 and
research consistently shows that people with epilepsy want information on
SUDEP, but doctors rarely talk about it,”^2 said Cyndi Wright, director of the
SUDEP Institute, a project led by the Epilepsy Foundation in collaboration
with CURE, SUDEP Aware, Danny Did Foundation, AES and other leading epilepsy
organizations and experts. “We believe this infographic will empower people
with epilepsy to take steps to lower their risk and build awareness so we can
work together to prevent SUDEP.”
“We’re honored to partner with the Epilepsy Foundation on such an important
endeavor,” said Staffan Schüberg, president of Lundbeck in the U.S. “Lundbeck
has more than 100 neurology field representatives committed to helping people
with epilepsy. This month, they will be scheduling meetings with physicians
that solely focus on delivering the Epilepsy Foundation’s infographic, so that
it gets into the hands of more people living with epilepsy and their
Epilepsy produces seizures affecting a variety of mental and physical
functions. It’s also called a seizure disorder. When a person has two or more
unprovoked seizures, they are considered to have epilepsy. Epilepsy and
seizure disorders affect more than 2 million American of all ages.^3
About the Epilepsy Foundation
The Epilepsy Foundation, a national nonprofit with affiliated organizations
throughout the United States, has led the fight against epilepsy since 1967.
The Foundation's mission is to stop seizures, find cures and overcome the
challenges created by epilepsy. For additional information, please visit
About the Epilepsy Foundation SUDEP Institute
The Epilepsy Foundation SUDEP Institute unites leading epilepsy organizations
including American Epilepsy Society, CDC, CURE, Danny Did Foundation,
NIH/NINDS, SUDEP Aware, and epilepsy experts. Our mission is to prevent SUDEP
and support people confronting the fear and loss caused by SUDEP. For
additional information, please visit www.epilepsy.com/sudep.
About Lundbeck in the U.S.
A wholly owned subsidiary of H. Lundbeck A/S in Denmark, Lundbeck U.S. is
headquartered in Deerfield, Illinois. With a special commitment to the
epilepsy community, Lundbeck employees actively support and participate in
hundreds of community-based initiatives, including Studio E, an art therapy
program Lundbeck makes available with the Epilepsy Foundation. Learn more
about our epilepsy community programs at YourPartnerInEpilepsy.com.
The “Managing Epilepsy & Seizures: Facts to Help Keep You Safe” infographic
was designed by Centric Infographics. Centric Infographics is an
audience-centric, data-driven organization with a simple philosophy – start
with better information. Learn more at:www.centricinfographics.com.
1.The Centers for Disease Control and Prevention. Epilepsy. SUDEP.
http://www.cdc.gov/epilepsy/sudep/index.htm. Accessed: 11/13/2013.
2.Medscape. “Most Neurologists Avoid SUDEP in Epilepsy Discussions.”
http://www.medscape.com/viewarticle/775573. Accessed: Accessed:
3.Epilepsy Foundation. What is Epilepsy Page.
Photos/Multimedia Gallery Available:
Ken Lowenberg, 301-918-3773
Matt Flesch, 847-282-1154
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