New Online Community Connects People Affected by Challenging Seizure
DEERFIELD, Ill. -- November 1, 2013
Lundbeck today announced the launch of LGS Together, an online initiative for
people impacted by epilepsy, including those affected by Lennox-Gastaut
syndrome (LGS). LGS Together will help parents and family members share their
personal experiences and find strength for the journey of caring for someone
with a challenging seizure disorder like LGS. The LGS Together launch
coincides with Epilepsy Awareness Month in November and LGS Awareness Day on
LGS Together is a result of collaboration among people with LGS, their
families and friends, leading epilepsy and LGS patient organizations and
Lundbeck. The website, LGSTogether.com, features stories, advice and knowledge
from members of the community, as well as resources and information parents
can use in their daily lives. On the LGS Together Facebook page, parents and
families can get regular updates about the program, discover epilepsy
community events and activities, share personal experiences and encourage each
“As a mother whose daughter has experienced seizures associated with LGS for
most of her life, I know how difficult it can be to find answers and support,”
said Jane Medlock, a member of Lundbeck’s LGS Working Group whose insights and
input led to the creation of the site. “I’m happy to be able to share my story
and be part of a community where parents and family members can find strength
from other people who really understand the ins and outs of caring for someone
with challenging seizures.”
Throughout the month of November, the LGS Together Facebook page will feature
the “Find Your Strength” campaign, which provides opportunities for people to
describe how they find strength in their daily lives. Weekly posts will
include videos highlighting unique insights and providing encouragement to the
epilepsy community. For each visitor who “Likes” the weekly featured post,
Lundbeck will make a $1 donation to the LGS Foundation and Epilepsy
Foundation, up to $10,000 to each organization.
“We know from our ongoing conversations with members of the epilepsy community
that parents truly appreciate hearing from other families who understand
epilepsy and LGS. We created LGS Together to help foster that connection,”
said Jill Gattone, manager of epilepsy advocacy and patient support at
Lundbeck. “Parents can visit the website to get guidance from others living
with LGS and join the Facebook page to extend the conversation.”
For more information, please visit www.lgstogether.com and
About Lennox-Gastaut Syndrome (LGS)
LGS is a rare and severe form of epilepsy.^1 The most common features of LGS
are multiple types of seizures, frequent seizures, delays in mental and/or
physical motor skills and an abnormal EEG or brain wave pattern.^1,2 LGS
typically occurs between 2-8 years of age,^3 and 80 percent of children
diagnosed with LGS will continue having seizures into their adult years.^3 The
prognosis of Lennox-Gastaut syndrome can greatly vary from person to person.^4
Complete recovery, with freedom of seizures and normal development, is unusual
for a child with LGS. There is no cure for the disorder.^4
About the Lennox-Gastaut Syndrome Foundation
The LGS Foundation is a non-profit organization dedicated to providing
information about Lennox-Gastaut syndrome while raising funds for research,
services and support for individuals living with LGS and their families.
The LGS Foundation is based in New York City and provides services and
information to thousands of members across the world.
About the Epilepsy Foundation
The Epilepsy Foundation, a national nonprofit with affiliated organizations
throughout the United States, has led the fight against epilepsy since 1968.
The Foundation's mission is to stop seizures, find cures and overcome the
challenges created by epilepsy. For additional information, please visit
About Lundbeck in the U.S.
A wholly owned subsidiary of H. Lundbeck A/S in Denmark, Lundbeck U.S. is
headquartered in Deerfield, Illinois, and is committed to providing innovative
specialty therapies that fulfill unmet medical needs of people with brain
disorders. In its late-stage research pipeline, the company has neurology
compounds under investigation for Alzheimer’s disease, stroke and epilepsy, in
addition to therapies in development for mental health disorders.
With a special commitment to the epilepsy community, Lundbeck makes a
scholarship available to help families attend the LGS Foundation’s Family &
Professional Conference. Each year our employees actively support and
participate in hundreds of community-based initiatives, including Studio E, an
art therapy program Lundbeck makes available with the Epilepsy Foundation.
Learn more about our epilepsy community programs at YourPartnerInEpilepsy.com.
Lundbeck is a global pharmaceutical company highly committed to improving the
quality of life of people living with brain diseases. For this purpose,
Lundbeck is engaged in the entire value chain throughout research,
development, production, marketing and sales of pharmaceuticals across the
world. The company’s products are targeted at disorders such as depression and
anxiety, psychotic disorders, epilepsy, Huntington’s, Alzheimer’s and
Parkinson’s diseases. Lundbeck’s pipeline consists of several mid- to
late-stage development programs.
Lundbeck employs more than 5,800 people worldwide, 2,000 of whom are based in
Denmark. We have employees in 57 countries and our products are registered in
more than 100 countries. We have research centers in Denmark, China and the
United States and production facilities in Italy, France, Mexico, China and
Denmark. Lundbeck generated revenue of approximately DKK 15 billion in 2012.
Lundbeck’s shares are listed on the stock exchange in Copenhagen under the
symbol “LUN.” Lundbeck has a sponsored Level 1 ADR programme listed in the US
(OTC) under the symbol “HLUYY.”
For additional information, we encourage you to visit our corporate site
1 Medscape. Lennox-Gastaut Syndrome.
http://emedicine.medscape.com/article/1176735-overview. Accessed 9/19/13.
2 Arzimanoglou, Alexis et al. Lennox-Gastaut syndrome: a consensus approach on
diagnosis, assessment, management, and trial methodology. The Lancet. 2009:
3 Van Rijckevorsel, Kenou et al. Treatment of Lennox-Gastaut syndrome:
overview and recent findings. Neuropsychiatric Disease and Treatment. 2008:
4 NINDS. Lennox-Gastaut Syndrome Information Page.
Matt Flesch, 847-282-1154
Press spacebar to pause and continue. Press esc to stop.