Data From Largest Global RA Patient Survey Reveals Patients Value A Disease
NORTH CHICAGO, Illinois, Oct. 9, 2013
-- On World Arthritis Day, RA: Join the Fight Offers New Tool to Empower RA
NORTH CHICAGO, Illinois, Oct. 9, 2013 /PRNewswire/ --Data from the largest
global rheumatoid arthritis (RA) patient survey revealed nearly half (44
percent) of RA patients do not have a disease management plan and as many (45
percent) feel their disease is only being managed fairly or poorly. To address
these findings, RA: Join the Fight is launching a patient-physician discussion
guide in conjunction with World Arthritis Day on October 12 to empower
patients to work with their doctors to create disease management plans
tailored to their individual needs and personal goals. RA: Join the Fight is
an AbbVie global initiative that provides resources and education to people
impacted by RA.
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"A disease management plan serves as an individual roadmap that enables
doctors to tailor their strategy for managing a patient's RA based on both
clinical and personal goals," said Roger Levy, Adjunct Professor of
Rheumatology, The State University of Rio de Janeiro, Brazil. " RA: Join the
Fight encourages RA patients from around the world to work with their doctors
to create personalized disease management plans."
RA is a chronic autoimmune disease that can affect many aspects of patients'
lives. The anonymous global patient survey, that included 10,171 patients from
42 countries, found that RA patients value having a disease management plan.
Compared to those who do not have a disease management plan, patients who do
were more likely to describe their RA management as excellent/good (65 percent
vs. 40 percent).
Additionally, those who do have a disease management plan were more likely
than those who do not to report strong relationships with their physicians,
agreeing with the statements that they trust their doctor's recommendations
regarding their disease management plan (94 percent vs. 78 percent), and they
work with their doctor as a team to develop it (90 percent vs. 57 percent).
"Self-advocacy is an important part of developing a disease management plan
that will help you and your doctor identify and work toward personalized
goals," said Dawn Richards, an RA patient and RA: Join the Fight advisory
committee member from Canada. "This new resource, created in collaboration
with RA advocates and doctors from around the world, will help people with RA
have robust conversations that inform the creation of disease management
The survey also found that having a disease management plan can impact one's
outlook. Patients with a disease management plan were nearly twice as likely
to feel hopeful (39 percent vs. 23 percent) and confident (31 percent vs. 16
percent) as those who do not have a plan when asked how they felt about living
with their RA over the past week.
About RA: Join the Fight RA: Join the Fight , an AbbVie global initiative,
aims to be a global source of information to help educate people living with
RA and those who support them. RA: Join the Fight , endorsed by more than 40
advocacy organizations from around the world, is a collaborative global
effort, with expert partners – patients, physicians, nurses and researchers –
involved in the development and implementation of the initiative's resources
The RA: Join the Fight anonymous global RA patient survey was conducted by
Harris Interactive in 42 countries via paper (six countries) and online (36
countries) between February 14 and April 11, 2013. The survey evaluated
results from more than 10,000 adults with RA from around the world (n=10,171).
Survey respondents have been living with a diagnosis of RA for an average of
nine years, and were more likely to be women than men (74 percent vs. 26
percent), with a mean age of 49.8 years old. Complete survey methodology,
including sample size per country, is available upon request.
The RA: Join the Fight global advisory committee along with more than 40
patient and medical organizations from around the world issued a
call-to-action in June of this year for patients to have robust conversations
with their physicians about their disease management plans. Since then, more
than 1,000 patients from 45 countries have pledged to start the conversation
and collaborate with their doctor to develop a plan to manage their disease.
Visit www.RAJointheFight.com to learn more.
About the Discussion Guide The RA: Join the Fight patient/physician discussion
guide was developed in partnership with the same multinational,
multidisciplinary expert panel that launched the initiative in June 2013.
It suggests questions and topics in three categories: physical, physiological
and proactive. The physical category focuses on how a patient is managing
their symptoms and it also supports a strong understanding of RA disease
progression. The physiological category includes social interactions at home
and work and offers prompts for discussing items such as nutrition, exercise
and additional support services that may be appropriate for an RA patient. The
proactive category features idea starters for short and long-term goal setting
and includes topics such as beginning or returning to a hobby, advancing or
changing one's career, participating in recreational or competitive exercise
and beginning a family.
The RA: Join the Fight discussion guide is now available for easy download and
printing at www.RAJointheFight.com/discussion-guide . Additional language
versions will become available in the coming months.
About Rheumatoid Arthritis Rheumatoid arthritis, or RA, is a chronic
autoimmune disease in which the body mistakenly attacks healthy joints,
causing pain, swelling, stiffness and over time, loss of function in the
joints, as well as overall fatigue and weakness. ^1,2,3 RA may also cause
premature mortality, disability and compromised quality of life. ^4 The onset
of RA usually occurs in people between the ages of 25 and 55 years old, though
it can occur at virtually any age. ^1,2 Typically, RA affects women more than
men, with three times as many women suffering from the disease. ^2,5 Many
people living with RA have difficulty performing common everyday tasks, like
opening a jar or turning a doorknob. ^3
About AbbVie AbbVie is a global, research-based biopharmaceutical company
formed in 2013 following separation from Abbott.The company's mission is to
use its expertise, dedicated people and unique approach to innovation to
develop and market advanced therapies that address some of the world's most
complex and serious diseases.In 2013, AbbVie employs approximately 21,000
people worldwide and markets medicines in more than 170 countries.For further
information on the company and its people, portfolio and commitments, please
visit www.abbvie.com .Follow @abbvie on Twitter or view careers on our
Facebook or LinkedIn page.
1. National Institutes of Health.
http://www.nlm.nih.gov/medlineplus/rheumatoidarthritis.html . Accessed
9/3/132. National Institutes of Health.
http://www.nlm.nih.gov/medlineplus/ency/article/000431.htm . Accessed 9/3/133.
Arthritis Foundation. How Will Rheumatoid Arthritis Affect You?
. Accessed 9/3/134. Brooks PM. The burden of musculoskeletal disease--a global
perspective. Clin Rheumatol. 2006 Nov;25(6):778-81. 5. American College of
Rheumatology. Rheumatoid Arthritis Fact Sheet.
. Accessed 9/3/13
Contact: Kelli Teno, AbbVie, +1 847-935-9593, firstname.lastname@example.org
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