Girl Band Cimorelli To Perform at Global Genes Project's 2013 RARE Tribute to Champions of Hope™ Benefit

Girl Band Cimorelli To Perform at Global Genes Project's 2013 RARE Tribute to
                          Champions of Hope™ Benefit

Dr. Stephen Groft, National Institutes of Health, Josh Sommers, Chordoma
Foundation and Six Year Old Dylan Siegel, Author of "Chocolate Bar" Book, To
Be Honored at Event

PR Newswire

ALISO VIEJO, Calif., June 27, 2013

ALISO VIEJO, Calif., June 27, 2013 /PRNewswire-USNewswire/ --Global Genes |
RARE Project today announced that Cimorelli, an all-girl group popularized on
YouTube and signed to Universal Music's Island label, will perform live at
the 2^nd Annual RARE Tribute to Champions of Hope™ benefit on Saturday,
September 21, 2013 in Newport Beach, California. The annual charity event is
designed to bring together various stakeholders who Care About Rare™, while
honoring many pioneering individuals who are working tirelessly to advocate
for the millions of patients and their families affected by rare and genetic
diseases. Tickets to the charity event are available at:
https://globalgenes.org/2013-gala-registration/.

"We are delighted to have the Cimorelli sisters performing at our 2013 gala to
help raise awareness for the millions of people collectively affected by
chronic and life threatening rare and genetic conditions," said Nicole Boice,
president, Global Genes | RARE Project. "Expect an amazing night filled with
inspiration as the rare disease community unites once again to honor our RARE
Champions of Hope™."

Global Genes | RARE Project is a leading non-profit organization advocating
for the roughly 30 million Americans and approximately 300 million people
worldwide who are affected by rare and genetic diseases. In the United States,
a disease is considered rare if it affects fewer than 200,000 Americans per
individual disease. According to the National Institutes of Health (NIH),
there are nearly 7,000 such rare diseases and an estimated 95% do not have a
single approved drug treatment.

The 2013 RARE Tribute to Champions of Hope™ sponsors include Aegerion,
Alexion, Amicus Therapeutics, Auxilium, Bayer, BIO, BioMarin, Celgene, Centric
Health Resources, FK Health, Genzyme, Glaxo Smith Kline, Idis, Illumina,
Intermune, McLaren, Novartis, Patient Crossroads, PatientsLikeMe, Patient
Services Inc, Pfizer, PhRMA, Raptor, Sarepta Therapeutics, Shire, Sigma Tau,
Siren Interactive, Synageva, Vanda Pharmaceuticals, Vertex, Vidara
Therapeutics, ViroPharma, Walgreens and Watson Land Company.

Numerous awards will be presented at the 2^nd Annual RARE Tribute to Champions
of Hope™ to recognize the key innovators and pioneering leaders in the rare
and genetic disease community. The following individuals will be honored at
the 2013 event:

  oThe Henri Termeer Lifetime Achievement Award – Honoring Dr. Stephen Groft,
    Director, National Institutes of Health, Office of Rare Disease Research.
    Dr. Groft has spent nearly 30 years advancing research and treatments for
    millions of people afflicted with rare and genetic diseases.
    http://rarediseases.info.nih.gov/research/7/ordr-programs
  oRARE Champion Award – Patient Driven Science – Honoring Josh Sommers,
    Executive Director, Chordoma Foundation. Josh co-founded the Chordoma
    Foundation to speed the pace of chordoma research after he was diagnosed
    with a skull-base chordoma in 2006. http://www.chordomafoundation.org/
  oRARE Champion Award – Advocacy – Honoring Rick Guidotti, Founder, Positive
    Exposure. Positive Exposure utilizes photography and video to transform
    public perceptions of people living with genetic, physical and behavioral
    differences. http://positiveexposure.org/
  oRARE Champion Award – Advocacy – Honoring Dylan Siegel, a 6-year-old 1st
    grader who wrote a book called "Chocolate Bar" to raise money towards a
    cure for his best friend's (Jonah Pournazarian) rare liver condition
    called Glycogen Storage Disease 1b, http://chocolatebarbook.com/

For more information about the 2013 RARE Tribute to Champions of Hope™ or to
learn more about the Cimorelli sisters, visit the following links:

Web: http://globalgenes.org/
Facebook: https://www.facebook.com/globalgenesproject
Twitter: https://twitter.com/GlobalGenes, @GlobalGenes

Web: http://www.cimorellimusic.com/
Facebook: https://www.facebook.com/Cimorelliband
Twitter: https://twitter.com/Cimorelliband, @Cimorelliband
YouTube: http://www.youtube.com/user/cimorellitheband

About Cimorelli

The six sisters of Cimorelli perform top pop hits of the day in an a cappella
style, their voices blending in perfect unison. Not only do these girls know
harmony, each are musicians who write their own songs, talents that impressed
executives at Universal Records, which signed Cimorelli in April 2010. With
nearly 500 million views and 2 million subscribers on YouTube, Cimorelli has
grown their enthusiastic fan base to such a level that when they released
their "Believe It" EP in December 2012, it debuted in the Top 10 worldwide on
the iTunes charts.

About Global Genes | Rare Project

Global Genes | RARE Project is a leading global rare and genetic disease
patient advocacy organization. Global Genes | RARE Project's mission is to
unify a global rare and genetic disease community by providing connections and
resources to ease the burdens of affected families.Global Genes | RARE
Project works to promote the needs of the rare and genetic disease community
under the unifying symbol of hope – the Blue Denim Genes Ribbon™.

SOURCE Global Genes | RARE Project

Website: http://globalgenes.org/
 
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