DIA Announces Class of 2013 Patient Fellowship Program Scholarship Recipients

  DIA Announces Class of 2013 Patient Fellowship Program Scholarship

                     Paving the Way for Patient Advocates

DIA 2013

Business Wire

HORSHAM, Pa. -- March 26, 2013

DIA today announced its Class of 2013 Patient Advocate Fellows, awarding
scholarships to 19 nationally recognized patient organizations. The program,
in its third year, saw its largest application pool to date, having received
over 75 submissions. DIA will support the new Fellows’ registration fees and
all travel costs associated with attending the DIA 2013 49^th Annual Meeting,
June 23-27 in Boston.

Patient organizations play a key role in DIA’s overall mission of education
and knowledge-transfer and are a focus of the DIA 2013 49^th Annual Meeting.
“We are ramping up our work with patient advocates to educate them on how to
best and most effectively work on behalf of their organizations. The patient
voice is vital and DIA continues to teach advocates how to use theirs,” said
Donna Mayer, Manager of Stakeholder Engagement at DIA.

While at the annual meeting, patient representatives will have opportunities
to develop, strengthen, and support collaborations with policymakers, health
professionals, industry representatives, and academia while promoting dialogue
and sharing best practices. Fellows will be educated in every facet of the
discovery, development, and life cycle management of pharmaceuticals,
biotechnology, medical devices, and related products.

According to Colleen Zak, Patient Fellow Alumni (Class of 2012), “Being part
of the DIA Patient Fellowship Program far exceeded my expectations. It
provided me with incredible networking opportunities for the rare condition I
represent – Autosomal Recessive Polycystic Kidney Disease (ARPKD) and
Congenital Hepatic Fibrosis (CHF). I was given access to a wealth of
enlightening educational sessions that offered distinctive new perspectives
from industry and drug companies, and from policy makers and regulators. I was
exposed to fascinating information about research positioning, study designs
and precision medicine. I found myself involved in one roundtable discussion
with industry, and in another with DIA leaders, academia and the FDA.”

This year’s fellows include representatives from:

  *African-American Community Health Group for the Central Coast (Carmelita
  *AIM at Melanoma (Val Guild)
  *American Cancer Society Action Network (Deborah Cornwall)
  *Angioma Alliance (Amy Akers)
  *Ann’s Place: the Home of I CAN (Debra Madden)
  *Coalition for Pulmonary Fibrosis (Teresa Barnes)
  *Dystonia Medical Research Foundation (Jan Teller)
  *Hepatitis Education Project (Michael Ninburg)
  *Hermansky-Pudlak Syndrome Network (Donna Appell)
  *Leukemia & Lymphoma Society – Mass Chapter (Lynne Graziano Morin)
  *Lymphatic Research Foundation (Wendy Chaite)
  *MitoAction (Cristy Balcells)
  *National Foundation for Celiac Awareness (Kristin Voorhees)
  *NephCure Foundation (Henry Brehm)
  *PMP Pals (Mary Grimm)
  *Program in Personalized Medicine & Targeted Therapeutics (Nelson
  *Recurrent Respiratory Papillomatosis Foundation (Jennifer Woo)
  *Spinal Muscular Atrophy Foundation (J. Stephen Mikita)
  *The Michael J. Fox Foundation for Parkinson’s Research (Lona Vincent)


DIA is a neutral, global, professional and member-driven association of nearly
18,000 professionals involved in the discovery, development and life cycle
management of pharmaceuticals, biotechnology, medical devices and related
health-care products. Through our international educational offerings and
myriad networking opportunities, DIA provides a global forum for knowledge
exchange that fosters the innovation of products,technologies and services to
improve health and well-being worldwide. Headquarters are in Horsham, Pa.,
USA, with offices in Basel, Switzerland; Tokyo, Japan; Mumbai, India; Beijing,
China; Washington, D.C. and Latin America. Visit our website at


Eric Rosen, 1-215-290-9153
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