PatientsLikeMe Names Kim Goodwin and Sally Okun to New Web and Patient Advocacy Positions

PatientsLikeMe Names Kim Goodwin and Sally Okun to New Web and Patient Advocacy 
Top UX Expert, Leading Patient Representative to Keep the Focus on
Patient Needs as and Industry Evolve 
CAMBRIDGE, MA -- (Marketwire) -- 03/19/13 --  PatientsLikeMe appoints
Kim Goodwin and Sally Okun RN to two newly-created positions that
will keep patient needs upfront as the company continues to enhance
its website and drive industry and government to make more
patient-centric decisions. Kim Goodwin has been named Vice President
(VP) of User Experience (UX) and Sally Okun has been promoted to VP
of Advocacy, Policy and Patient Safety.  
PatientsLikeMe Co-founder and President Ben Heywood says the
appointments underscore the company's "patients first" mission.
"We've been committed to understanding and representing patient
interests for years. With Kim and Sally in these roles, we'll be in
an even better position to keep patients at the forefront of all we
do -- from how we develop our website to how we represent patient
interests at an industry and policy level." 
Kim Goodwin
 In her role as VP of UX, Kim will evolve the information
and structure on to help people live better
lives with their conditions. She plans to expand member involvement
in the website development process to improve usability and to make
sure the website's content answers their most important questions.
She will also make it easier for members to find and connect with
people who share not just the same condition, but the same values and
experiences. Additionally, Kim and her new team will improve how
researchers and providers conduct research and interact with members
on the site.  
Kim's expertise in design has made her one of the most distinguished
UX experts in the world. She is a frequent speaker and the author of
the 2009 bestseller Designing for the Digital Age, which is heralded
as the most comprehensive how-to guide in the field. Before joining
PatientsLikeMe, Kim was VP of Design and General Manager at
California-based design firm Cooper. Over the years, Kim has also
worked with clients including Lexus, Cardinal Health, Abbott,
Medtronic Diabetes, Boeing, Cisco, and Best Buy. Her healthcare
experience includes work for companies delivering diagnostic and
treatment devices, consumer health education and tracking, and
desktop and tablet-based electronic medical records.  
Sally Okun
 As VP of Advocacy, Policy and Patient Safety, Sally plays
a vital role in ensuring the patient voice is heard, collected and
disseminated to affect better treatment, services and care. As the
company's liaison with government and regulatory agencies, she will
bring the patient voice to worldwide healthcare discussions and
educate policy makers on the benefits of sharing health data.
Previously, Sally developed the company's drug safety and
pharmacovigilance platform, which monitors patient data for potential
adverse events. In this new role, Sally will continue to expand the
website's drug safety content and ensure the data collected about
treatments and their impact become more transparent to the community
at large.  
Recently named a 2013 TEDMED speaker, Sally joined PatientsLikeMe in
2008 and led the team responsible for the website's medical ontology
and curation of patient-reported health data. She has since been a
frequent speaker at policy workshops and forums and has contributed
to peer reviewed publications and discussion papers for the Institute
of Medicine (IOM) and others. She also co-authored a chapter for
Health Informatics: An Interprofessional Approach, an upcoming
Elsevier textbook. A registered nurse for over three decades, Sally's
clinical practice specialized in palliative and end-of-life care. In
that time she also participated in numerous clinical, research, and
educational initiatives of national significance.  
About PatientsLikeMe
 PatientsLikeMe is a patient network that
improves lives and a real-time research platform that advances
medicine. Through the network, patients connect with others who have
the same disease or condition and track and share their own
experiences. In the process, they generate data about the real-world
nature of disease that help researchers, pharmaceutical companies,
regulators, providers and nonprofits develop more effective products,
services and care. PatientsLikeMe is a trusted source for real-world
disease information and a clinically robust resource that has
published more than 30 peer-reviewed research studies. Visit us at or follow us on our blog, on Twitter or via
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Office: +1 617.229.6643
Mobile: +1 774.217.1330 
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