Caring For Loved Ones With Lennox-Gastaut Syndrome -- It Takes A Village
Eisai Recognizes Inaugural LGS Awareness Day and Epilepsy Awareness Month with
Launch of New Caregiver Support Video
WOODCLIFF LAKE, N.J., Nov. 8, 2012
WOODCLIFF LAKE, N.J., Nov. 8, 2012 /PRNewswire/ --With approximately two
million people in the United States living with epilepsy, including a severe
and rare form called Lennox-Gastaut syndrome (LGS), many more may be
struggling with the demands of caring for a loved one with this condition – a
task that may require around-the-clock attention and support. In recognition
of November as Epilepsy Awareness Month and the inaugural LGS Awareness Day on
November 1, of which Eisai is a sponsor, Eisai announced the premiere of
"Identifying Your Team of Experts," the fourth installment in their
"Navigating the Storm" educational video series. The new video provides
caregivers with information on how to identify a health care team, through
community and online resources, to best meet their loved ones' needs.
(Logo: http://photos.prnewswire.com/prnh/20120413/MM87168LOGO )
The "Navigating the Storm" video series can be found on LivingWithLGS.com, a
website designed to help provide much needed support for parents and
caregivers of loved ones with LGS. "Caring for a child with LGS is more than a
full time job particularly when challenged to also try to maintain the
family's quality of life," says Patricia A. Gibson, MSSW, Director of the
Epilepsy Information Service at Wake Forest Baptist MedicalCenter in
Winston-Salem, N.C. "In addition to around-the-clock care provided at home,
families have the daunting taskof finding a health care team who can provide
the expertise and extra support they need to best care for their loved ones."
LGS is identified by three characteristics: multiple seizure types, an
electroencephalogram (EEG) with a slow spike-wave pattern between seizures,
and cognitive function or developmental delays. Despite therapeutic advances,
LGS is challenging to control as many patients may require constant support
from numerous health care professionals.
"Eisai is committed to keeping the needs of patients and their families
affected by epilepsy and LGS at the forefront of all that we do as part of our
corporate human health care mission," said Betsy Williams, Medical Director,
Epilepsy, Eisai Inc. "We are pleased to offer the 'Navigating the Storm'
series as well as a variety of other resources on LivingWithLGS.com to assist
caregivers and families with the care of their loved ones who have LGS."
Lennox-Gastaut syndrome (LGS) is a rare and severe form of epilepsy that
affects up to 4 percent of children with epilepsy. The age of onset is between
1 and 8 years. LGS affects an estimated 1 in 50,000 to 1 in 100,000
LGS is characterized by a clinical triad of a slow spike-and-wave pattern on
an EEG, impairment of cognitive function and multiple types of seizures,
including tonic (muscle stiffening), atypical absence (staring) and atonic
(loss of muscle tone) seizures being the most common.
Tonic and atonic seizures, also known as "drop attacks," cause the body to
fall uncontrollably, and are a primary cause of facial and head injuries as
well as lacerations that can leave disfiguring scars. For this reason, many
children with LGS must wear helmets.
In addition to enduring multiple seizures, children and adults living with LGS
may be developmentally delayed and may require help with some or all of the
usual activities of daily living. The impact of seizures on children and
adults with LGS requires extensive care and support from parents, caregivers
and family members.
LivingWithLGS.com was created to provide support and resources for parents and
caregivers of children with LGS. LGS can impact daily life in a number of
ways, including family relationships, school and home life. The website
connects parents and caregivers of patients with LGS to the resources they
need to help manage their child's condition while maintaining their family's
quality of life. Caregivers can also learn more about the syndrome overall,
including multiple seizure types and behavioral issues associated with LGS,
along with some brief information about treatment options.
Navigating the Storm
"Navigating the Storm" is a series of educational videos posted on
LivingWithLGS.com that are designed to provide parents and caregivers with
tools and resources to help them manage the care of their loved ones with
LGS.The videos feature nationally recognized health care experts in LGS
covering the following topics: overview of LGS; maintaining proper sleep
habits; managing behavior challenges, and the newest video, assembling a
health care team.
Eisai Inc. was established in 1995 and began marketing its first product in
the United States in 1997. Since that time, Eisai Inc. has rapidly grown to
become a fully integrated pharmaceutical business. The company serves as the
U.S. pharmaceutical operation of Eisai Co., Ltd., a research-based human
health care (hhc) company that discovers, develops and markets products
throughout the world.
Eisai has a global product creation organization that includes U.S.-based R&D
facilities in Massachusetts, New Jersey, North Carolina and Pennsylvania, as
well as manufacturing facilities in Maryland and North Carolina. The company's
areas of R&D focus include neuroscience; oncology; vascular, inflammatory and
immunological reaction; and antibody-based programs. For more information
about Eisai, please visit www.eisai.com/US.
SOURCE Eisai Inc.
Contact: Marcia Diljak, Eisai Inc., +1-201-746-2236, email@example.com
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